Friday, June 12th
08.30 – 09.50 Issues of renal replacement therapy in children with a severe mental disability
Chair Persons: Annika von Schantz, Robert Novo ,
08.30 08.50 A survey on the opinion of caregivers regarding the possibility of renal replacement therapy in children with a disability severe mental: Preliminary results
Lore Willem and al. Department of pediatric nephrology and organ transplantation, University Hospitals of Leuven & Katholieke Universiteit Leuven, Belgium
08.50 - 09.20 Autistic Spectrum Disorder (ASD) and Chronic Kidney Disease – The challenges of renal replacement therapy
Johnson S, and al. Evelina London Children’s Hospital, London UK
09.20 – 09.50 Deserving or undeserving recipients” whose kidney is it anyway?
Fionna Bathgate, and al. Great Ormond Street Children’s Hospital, NHS Foundation Trust, London, UK
09.50 -10.15 Coffee Break
10.15 – 12.45 Use of social media in patient care and communication
Chair Persons: Laora Tilman, Dirk Bethe
10.15 – 10.45 Social media, health data and patient care: what does the law think about it?
Laora Tilman, Direction of Legal Affairs of Lille University Hospital France
10.45 – 11.15 The Impact of Social Media on Renal Transplantation
Fiona Gamston Birmingham Children’s Hospital, Birmingham UK
11.15 – 11.45 Like, follow, share: communicating with families in a children’s kidney network.
Shelley Jepson, Nottingham Children’s Hospital UK
11.45 – 12.45 Workshop about social media
Facilitators : Laora Tilman, Christopher Reid,
12.45 – 13.45 Lunch
13.45 – 16.35 Careguidelines for transition pathways from children to adult centers
Chair Persons: Jenny Prüfe, Maud Dehennault
13.45 – 14.15 Transition from pediatric to adult center in kidney transplanted patients: Impact on psychosocial status and renal function
Maud Dehennault, and al. Department of pediatric and adult nephrology, University Hospital Lille.
14.15 – 14.45 The impact of the young adult worker (YAW) on the transition of young adults from paediatric to adult services.
Gemma King and al., Royal Free London NHS Foundation Trust, Nephrology, LondonUK
14.45 - 15.15 Ready Steady Go (RSG): Delivering successful transition through empowering young people and addressing their needs as they move from paediatric to adult services
Arvind Nagra, and al. Southampton Children’s University Hospital, NHS Foundation Trust.
15.15 15.30 Coffee Break
15.30 - 15.50 The nephrologists’ perspectives on transitioning renal transplant patients in Germany – a TRANSNephro substudy
15.50 – 16.10 Preparing for the future – a qualitative analysis of the transition process of paediatric renal transplant patients.
Jenny Prufe Hannover Medical School, Department of Paediatric Kidney, Liver and Metabolic Diseases and Institute for Epidemiology, Social Medicine and Health Systems Research
16.10 - 16.35 Transition of care- a significant faze in the life of the chronically ill adolescent
Anna Tornivuori , Helsinki University Childrens´ Hospital
17.45 -19.00 Guided tour of Lille
19.45 - 23.30 Dinner at Restaurant in“ Le Mont des Cats „ with live music
